Everything is Going to be Fine

"Everything's going to be fine.
You have lots of doctor appointments in the future. Some day you may have surgery. Some day your condition may worsen. Some day you may find or develop another health problem. Some day you may have pain. Maybe you've already hit "some day".
I have felt your pain. I have felt your frustration. And sadness.
Everything's going to be fine. You are talented, intelligent, and beautiful. Your medical conditions pale under the light you hold within.
Doctors are bossy and narrow-minded. You are powerful. Demand what you need. Demand respect. Demand treatments that help your condition with minimal side effects or risks.
Everything's going to be fine.
Not because your body will become perfect. Not because you only have this "one" problem. Because you will rise to the challenge. Because you'll find this is not a "game" to win. You will have strengths, advantages, comforts and skills. You will accomplish great things. You will endure. You will love your defects as a part of your magnificent self.
Everything's going to be fine."  ~Amy Gashly, Unilateral Morning Glory Syndrome

 And everything is fine. Every day that passes I grow easier with the Bug's condition. Don't get me wrong, some days are harder than others, some days I want to do nothing more than cry all day and go to bed early, hoping the next day I will wake up and somehow it is all some sort of dream and everything is okay in the sense that it is normal. Instead, I wake up and feel that everything IS okay and everything IS normal. It is our normal. 

We fall into routines we don't even think about, a bib coming on means it is meal time, a washcloth in her hands means it is bath time, hands on the side means it is time to be picked up. It has begun to change the way I myself look at the world. I have become aware of things I would have never thought about before. The sounds of the motor on the refrigerator kicking on when the door is open, the different sounds the knobs for hot and cold water make, the cool temperature of silverware when pulled freshly from the door versus how it changes after it has been used over the course of a meal. Maybe, just maybe, we as people with full vision are the ones who are missing out on what the world has to offer.

Things aren't just okay. Things are fucking fantastic.