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Tuesday, September 27, 2011

What Did People Do Before the Internet?

Today I woke up to the normal routine of checking my email, once again.

Today, I received an email from Baby Center once again.

Today, I have hope.

Today, I feel like everything may not be perfect, but everything is going to be okay.

Today, I met another mother of daughter who has bilateral MGS.

To the beginning!  As I opened my daily Baby Center email, I saw I had a message from a person I had never heard of before.  It was another mother who had seen one of my posts about MGS on the babycenter forums and felt the need to send me a message. Before I knew it, I was directed to a Facebook group for people who are living with Morning Glory Syndrome, and still rock.  I was knee deep is posts from other parents like me who wanted to know that there was hope at the end of the tunnel, posts from people who were living with my daughter's condition and still thriving, posts that made me feel at home with a complete group of strangers. They were like me, my daughter, my husband, and they were all wearing the one in a million statistic like a badge of honor.

Today, for the first time since we have had this diagnosis, I feel like my husband and I aren't alone.

Today, I think I met an angel.

1 comment:

  1. That is awesome Deenie!! It is great to have friends and family to support you, but it is WONDERFUL to have someone that is going through it or has gone through it to talk to along the way!! I am so happy for you.

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